PKU Perspectives is your online source for hundreds of products that have been specially modified to be low in protein for those with PKU and other allied disorders. Visit pkuperspectives.com or call us at 1-866-PKU-FOOD.
PKU Perspectives was formed to share with all PKU families and those on low protein diets, the convenience foods we have learned to enjoy. After preparing meals for two PKU children of our own and an adopted handicapped grandchild with PKU for more than thirty years, we have discovered that convenience is most appreciated when you must prepare two meals at a time. PKU Perspectives is a for profit company. We employ many individuals who have a deep interest in providing products for special dietary needs. Our products are very specialized in that they are not mass produced. We look forward to offering new low protein products that will be available soon! Follow us on our page Low Pro Cooking With Country Sunrise https://www.facebook.com/groups/lowprocooking/
My name is Payton Hicks and I have phenylketonuria. PKU is the abbreviated term. My name is Cooper Hicks and I was diagnosed with PKU. I have this 35 year old son with PKU. It changed my life. I really only know parenting through the lens of being a mom of children with PKU. It is a rare genetic disorder which gives me the inability to not process protein, which is in every food. Every time you eat protein, it basically kills brain cells. Because I don't have the enzyme to break down phenylalanine so my body doesn't know what to do with it. So it goes to my brain and kills brain cells. It'so rare that obviously people have no idea about it. Therefore, not easy explaining it or really living with it, I would say. The food that's available today, it wasn't available when my son was younger. His formula was disgusting. I actually tasted it but he drank it. He did get used to it. Especially as a young kid, in the cafeteria I'd have different food and kids would see that and be I'm It's just getting the word out. All these other rare diseases have scientists and biotech companies working on finding a cure. It's really about spreading the word, getting the coverage, making sure the government knows and understands what this is and why we need coverage, why we need not just newborn screening but every state needs to cover these patients because we have people falling off diet. Palinzeek is similar but different in the sense there's a different, in theory it would work for anyone who takes it except that people can have an allergic response to it. So, I didn't lower my fee levels but it works for some people and that's a really good thing. It works for my cousin but yeah, Palinzeek did not agree with me. After you were on a trial for Palinzeek and you had some negative side effects. I was in high school, my whole family started freaking out and I go upstairs and there's an ambulance outside and I'm And Payton's being helped into the ambulance and apparently. . . But when Injected myself I sat down and I was I got up, walked over to the bathroom and I was It was pretty scary. Yeah, I guess that was the tra I didn't get to see her until either the next day or later that night and she was in the hospital because of it. You were actually quite happy with a vegetarian diet and your formula as medication and managing your diet in PKU and you felt healthier doing that than trying a drug or trying something new. I feel There used to be not any options other than here's your low protein diet, here's your metabolic formula, that's the treatment. Everybody was on the same treatment. And now there's, And the one thing that we have not historically had is options.
